Tuesday, May 11, 2010

Sometimes I Feel Like A Ghost

May 12th is International ME/CFS/FM Awareness Day. For the second year I am participating in Blogging for ME/CFS Awareness.

For the last couple of months I've been dealing with the worst relapse I've had in several years. The brain fog has been horrendous....to the point where it didn't feel like I was even in my body. I spent many days wandering in my house...not knowing what I was doing or needed to do, unable to leave, drive, or care for myself. I felt vacant, hollow, numb.....the person who I know myself to be felt as if she were slipping away into a murky realm. I felt like a ghost....

I've improved quite a bit just in the last week....not enough to write a whole lot...With the help of my awesome husband, Tony, he took some photos of me....then I added those to some photos we took in early November 09. It felt good to create a piece of art again, which I haven't been able to do in some time.

This piece was inspired by my wandering our house, feeling like a ghost.

I've also started a new blog dedicated to my experiences with Chronic Fatigue Syndrome & Fibromyalgia. It's called Embers & Ash. That's where the majority of my blogging about CFS/FM will be. Please come by & take a peek sometime :)


Bairbre Aine said...

Stopped by to check in on you!
Sad to read of the relapse.
Happy you are on the mead.
However, I understand the 'ghost' like feeling.
Sending you warm, healing vibes my friend!

faerwillow said...

~i have a close friend who shares the same physical pain as you...it is such a frustrating road to walk...never knowing what the day may bring forth...i wish for you only strength to overcome the bad and let the sun shine bright upon you filling you with life and energy and inspiration to creative such gorgeous pieces and to only feel renewed and refreshed...warm wishes and brightest blessings~